Chronic Fatigue Syndrome (ME/CFS)
Management and Resources
At home
Although people with chronic fatigue require treatment, there are some behavior changes that may provide some relief: For example, avoid all caffeine 4-6 hours before bedtime. Caffeine is a stimulant and prevents sleep. Many products other than coffee and tea include caffeine, including energy drinks, soft drinks, and any food item containing chocolate. Some medications include caffeine. Caffeinated products should be limited to the morning or early afternoon hours.
People with chronic fatigue syndrome should also discontinue smoking cigarettes, vaping nicotine, or using any other products containing nicotine. Nicotine disrupts sleep and worsens the risk for sleep lapses during the daytime.
At work
Many people with chronic fatigue syndrome can no longer work full-time. For individuals who continue to work, taking short naps may be helpful. It may be best to let one's supervisor know about their medical need for a regularly scheduled nap or at least for regular breaks from the stress of work. It can be difficult advocating for oneself in the work environment. Note that the Americans with Disabilities Act requires employers to provide accommodations for workers with disabilities. However, the person with chronic fatigue syndrome must first make a formal request for work accommodations. A note from a physician can be helpful.
In relationships
Chronic fatigue syndrome often has an impact on personal relationships. Partners need to understand that the person with chronic fatigue needs a consistent sleep schedule to manage their condition and also needs regular rest breaks during the day. Support groups can help individuals and families better understand the disorder and learn from peers going through similar circumstances. Some support group meetings are open only to the person with the condition while others are open to interested partners and family members.
Organizations
Centers for Disease Control and Prevention