Narcolepsy
Management and Resources
At home
Although people with narcolepsy require treatment, there are some behavior changes that can provide some relief: For example, taking naps to relieve excessive fatigue during the day is strongly recommended. It may be hard to take naps outside of the home, or even at home, but they are very important in managing this disorder. In addition, keeping a regular sleep schedule by going to bed and waking up at consistent times is often helpful.
It is best to avoid caffeine 4-6 hours before bedtime. This includes more than coffee and tea: energy drinks, soft drinks, and any food item containing chocolate have caffeine in them.
People with narcolepsy are advised to discontinue smoking cigarettes, vaping nicotine, or using any other products containing nicotine. Nicotine disrupts sleep and worsens the risk for sleep lapses during the daytime.
At work
People with narcolepsy might need to let their supervisor know about the medical need for a regularly scheduled nap. This might be arranged by working longer hours, taking a shorter lunch break, or by other means. It can be difficult advocating for oneself in the work environment. Note that the Americans with Disabilities Act requires employers to provide accommodations for workers with disabilities. However, the person with narcolepsy must first make a formal request for work accommodations. A note from a physician can be helpful.
In relationships
Narcolepsy often has an impact on personal relationships. Partners need to understand that the person with narcolepsy requires regular naps and a consistent sleep schedule to manage their condition. Support groups can help individuals and families better understand narcolepsy and learn from peers going through similar circumstances. Some support group meetings are open only to the person with the condition while others are open to interested partners and family members.
Organizations
National Institute of Neurological Disorders and Stroke